we began a new roller-coaster ride in this terrifying, yet somehow rewarding, theme park life seemed to be building for us. They called this new ride Acute Lymphoblastic Leukemia, and the name alone gave me nightmares.
Year: 2018
For the superstitious, Friday the 13th is viewed as a day of bad luck. However,
The realization has hit me that I am not the person I was before all this medical mystery and special needs business came about
The struggle is real at times; I’m not going to lie. We have three kids full time. Things can get crazy and out of hand, fast.
Our family, more importantly, our daughter, has been dealt some fairly iffy cards. We plan to help her play out her hand to it’s fullest potential by reaching out to the world. I guess you could call it our version of “Go Fish?”
So many people are just spitting out the words “Happy Mother’s Day,” and taking it all for granted. Just remember, this is their world too, and they put you at the center of it.
As the mom of a little girl (Kailanie) with Lateral Meningocele syndrome (LMS), I wonder,
Entering the world of special needs parenting can be a little intimidating. So many emotions go into it. For me, anxiety and fear try to overthrow love at every turn. Especially when entering this world without a diagnosis, the emotions of the unknown are brutal.