Finished with Treatment for Leukemia
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Here it is. This is the day we have been waiting for since February 9, 2018, when we took our first trip to 10S – hematology/oncology. Kailanie is finished with treatment for leukemia!!
The road has been long, and downright scary at times. First, the rare syndrome world, then the cancer world on top of it. I’m fairly certain my daughter is a superhero!
I watched this girl rocked high dose Methotrexate and radiation instead of spinal tap/infusions. Because of her rare syndrome, she wasn’t able to have the full traditional treatment. More intense treatments were used instead, to make up for what couldn’t be done. We are hoping what she did get was enough.
Going forward, Kailanie will still be monitored closely by her team. We can’t escape the hospital/clinic life, but we will enjoy leaving those visits without chemo.
Our family is excited to be closing this treatment for leukemia chapter, and moving on to a new normal. We know only time will tell if Kailanie will be left with any lasting effects. It would be a lie to say I’m not terrified of what the future could bring.
Kailanie has come so far, even with cancer trying to knock her down. In the beginning she could hardly walk. Now she is working on running and jumping. Her speech has drastically improved as well. Her ability to overcome the odds makes me excited for her future.
As a family, we are looking forward to new adventures for Kailanie. First on the list is kindergarten. We will see where life takes us from there.
Ending treatment for leukemia may bring on new anxieties, and we, as a family, refuse to let control it our lives. We will not live in fear of the future. We plan to focus on the positive and see a bright future. So, if you need us, we’ll be over here living our best life! ✌️🤙
