As a special needs parent of a medically complex little girl I don’t get vacations….or at least I can’t remember the last time I had one.
Tag: Rare Syndrome
born rare, a limited edition. Her diagnosis was Lateral Meningocele Syndrome (LMS). On February 9, 2018, she went from limited addition to one-of-a-kind with childhood cancer. Her new diagnosis, Acute Lymphoblastic Leukemia
The struggle is real at times; I’m not going to lie. We have three kids full time. Things can get crazy and out of hand, fast.
As the mom of a little girl (Kailanie) with Lateral Meningocele syndrome (LMS), I wonder,