Most parents enjoy watching their kids play at the park. There are few parents that watch their kids play at the park while cheering like a lunatic on the inside…or outside, for some.
Tag: special needs
Rare disease day, February 28th, is a day to recognize those affected by a rare disease/disorder. In the USA, more than an estimated 25 million people are living with a rare disease. There are about 7000 different rare disease/disorders worldwide.
As a special needs parent of a medically complex little girl I don’t get vacations….or at least I can’t remember the last time I had one.
Sometimes as adults, we have so much to say to our young ones, only they can’t always understand
Most everyone has heard of Childhood Cancer, but most people have never heard of Chiari Malformation. For our family both are very real.
born rare, a limited edition. Her diagnosis was Lateral Meningocele Syndrome (LMS). On February 9, 2018, she went from limited addition to one-of-a-kind with childhood cancer. Her new diagnosis, Acute Lymphoblastic Leukemia
we began a new roller-coaster ride in this terrifying, yet somehow rewarding, theme park life seemed to be building for us. They called this new ride Acute Lymphoblastic Leukemia, and the name alone gave me nightmares.
The struggle is real at times; I’m not going to lie. We have three kids full time. Things can get crazy and out of hand, fast.